Experience and Response to Disability Stigma in South Asian Communities.

This qualitative study explored the experiences of stigma and responses to stigmatization among 13 South Asian parents of children with extensive support needs (ESN). Existing research indicates that students with intellectual disabilities often experience negative emotions such as shame, powerlessness, and frustration due to their disability status. Cultural beliefs significantly influence the experiences of disabled children and their families, with stigma perceived and felt differently across cultural groups. Participants were interviewed about their family and cultural beliefs, perceptions of disability, and experiences with school collaborations and social stigma. Thematic analysis revealed that South Asian families with children with ESN faced stigmatizing narratives about disability from their families and community. Responses to stigma included social exclusion, forming supportive communities, resistance to stigmatizing narratives, and turning to spiritual practices. This study indicated the need for culturally sensitive support and educational strategies for South Asian families with children with ESN. [ABSTRACT FROM AUTHOR]