JOURNAL ARTICLE

We need to engage representative patients' community rather than "expert patients" to increase impact of research in the era of personalized medicine: No.

  • Published In: Multiple Sclerosis Journal, 2025, v. 31, n. 4. P. 393 1 of 3

  • Database: Academic Search Ultimate 2 of 3

  • Authored By: Gajofatto, Alberto; Rimondini, Michela 3 of 3

Abstract

The article discusses the importance of engaging both expert patients and representative patients' communities in medical research, particularly in the context of personalized medicine. Expert patients, who have specialized knowledge about their health condition, play a crucial role in providing informed feedback, improving study designs, and enhancing the quality of research results. While representative patients offer valuable perspectives, the expertise and advocacy skills of expert patients significantly enhance the impact of research and help advance personalized medicine. The article emphasizes the need for comprehensive and inclusive healthcare research by involving both types of patient communities. [Extracted from the article]

Additional Information

  • Source:Multiple Sclerosis Journal. 2025/04, Vol. 31, Issue 4, p393
  • Document Type:Article
  • Subject Area:Health and Medicine
  • Publication Date:2025
  • ISSN:1352-4585
  • DOI:10.1177/13524585251315354
  • Accession Number:184137539
  • Copyright Statement:Copyright of Multiple Sclerosis Journal is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

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