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Hidden Ethical Challenges in Health Data Infrastructure.

  • Published In: Hastings Center Report, 2024, v. 54, n. 1. P. 15 1 of 3

  • Database: Academic Search Ultimate 2 of 3

  • Authored By: Contaxis, Nicole 3 of 3

Abstract

Data infrastructure includes the bureaucratic, technical, and social mechanisms that assist in actions like data management, analysis, storage, and sharing. While issues like data sharing have been addressed in depth in bioethical literature, data infrastructure presents its own ethical considerations, apart from the actions (such as data sharing and data analysis) that it enables. This essay outlines some of these considerations—namely, the ethics of efficiency, the visibility of infrastructure, the power of standards, and the impact of new technologies—in order to invite the bioethics community to participate in conversations about infrastructure, as their expertise is both needed and welcomed. [ABSTRACT FROM AUTHOR]

Additional Information

  • Source:Hastings Center Report. 2024/01, Vol. 54, Issue 1, p15
  • Document Type:Article
  • Subject Area:Library and Information Science
  • Publication Date:2024
  • ISSN:0093-0334
  • DOI:10.1002/hast.1564
  • Accession Number:175644268
  • Copyright Statement:Copyright of Hastings Center Report is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

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