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Developing a Congenital Upper Limb Difference Registry in Australia.

  • Published In: Journal of Hand Surgery (Asian-Pacific Volume), 2024, v. 29, n. 6. P. 486 1 of 3

  • Database: Academic Search Ultimate 2 of 3

  • Authored By: WILKS, Daniel James; MCCOMBE, David B. 3 of 3

Abstract

Clinical registries are increasingly common and have value in conditions such as congenital upper limb differences where collection of adequate data for scientific study can be challenging due to small numbers and clinical, surgical and psychosocial heterogeneity. This article discusses the motivation, purpose and development of the Australian Hand Differences Register before examining some of the challenges faced during its implementation and considering limitations of registry-derived data. Level of Evidence: Level V (Diagnostic) [ABSTRACT FROM AUTHOR]

Additional Information

  • Source:Journal of Hand Surgery (Asian-Pacific Volume). 2024/12, Vol. 29, Issue 6, p486
  • Document Type:Article
  • Subject Area:Social Sciences and Humanities
  • Publication Date:2024
  • ISSN:2424-8355
  • DOI:10.1142/S2424835524300068
  • Accession Number:181201996
  • Copyright Statement:Copyright of Journal of Hand Surgery (Asian-Pacific Volume) is the property of World Scientific Publishing Company and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

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